DATA PRIVACY POLICY

Last updated March 25, 2025

INTRODUCTION

Ollie Hinkle Heart Foundation (“OHHF”) respects the privacy of our users (“user” or “you”). This Privacy Policy explains how OHHF collects, uses, discloses, and safeguards your information when you visit our website, www.theohhf.org, including any other media form, media channel, mobile website, or mobile application related or connected to it (collectively, the “Site”). Please read this privacy policy carefully. If you disagree with the terms of this privacy policy, please do not access the site.

OHHF reserves the right to change this Privacy Policy at any time and for any reason. OHHF will alert you about changes by updating its “Last Updated” date. Any changes or modifications will be effective immediately upon posting the updated Privacy Policy on the site, and you waive the right to receive specific notice of each such change or modification.

You are encouraged to review this Privacy Policy periodically to stay informed of updates. By continuing to use the site after the date such revised Privacy Policy is posted, you will be deemed to have been made aware of, subject to, and accepted the changes in any revised Privacy Policy. This Privacy Policy was created using Termly’s Privacy Policy Generator.

COLLECTION OF YOUR INFORMATION

OHHF may collect information about you in a variety of ways. The information OHHF may collect on the site includes:

Personal Data
Personally identifiable information, such as your name, shipping address, email address, and telephone number, and demographic information, such as your age, gender, hometown, and interests, that you voluntarily give to us or when you choose to participate in various activities related to the site, such as online chat and message boards. You are under no obligation to provide us with personal information of any kind. However, your refusal to do so may prevent you from using certain site features.

Derivative Data
Our servers automatically collect information when you access the site, such as your IP address, browser type, operating system, access times, and the pages you have viewed directly before and after.

Financial Data
Financial information, such as data related to your payment method (e.g., valid credit card number, card brand, expiration date), that OHHF may collect when you purchase, order, return, exchange, or request information about our services from the site. OHHF stores only very limited, if any, financial information that OHHF collects. Otherwise, all financial information is stored by our payment processors, Stripe, The Giving Block, OneCause, and OneCause. You are encouraged to review their privacy policy and contact them directly to get responses to your questions.

Mobile Device Data
Device information, such as your mobile device ID, model, and manufacturer, and information about your device’s location if you access the site from a mobile device.

Data From Contests, Giveaways, and Surveys
Personal and other information you may provide when entering contests or giveaways and responding to surveys.

USE OF YOUR INFORMATION

Accurate information about you lets us provide you with a smooth, efficient, and customized experience. Specifically, OHHF may use information collected about you via the site to:

● Administer sweepstakes, promotions, and contests.
● Assist law enforcement and respond to subpoenas.
● Compile anonymous statistical data and analysis for use internally or with third parties.
● Deliver targeted advertising, coupons, newsletters, and other information regarding promotions and the site to you.
● Email you regarding your order.
● Enable user-to-user communications.
● Fulfill and manage purchases, orders, payments, and other transactions related to the site.
● Increase the efficiency and operation of the site.
● Monitor and analyze usage and trends to improve your experience with the site.
● Notify you of updates to the sites.
● Offer new products, services, and recommendations to you.
● Perform other business activities as needed.
● Prevent fraudulent transactions, monitor against theft, and protect against criminal activity.
● Process payments and refunds.
● Request feedback and contact you about your use of the site.
● Resolve disputes and troubleshoot problems.
● Respond to product and customer service requests.
● Send you a newsletter.
● Solicit support for the site.

 

DISCLOSURE OF YOUR INFORMATION

OHHF may share information OHHF has collected about you in certain situations. Your information may be disclosed as follows:

By Law or to Protect Rights
If OHHF believes the release of information about you is necessary to respond to legal process, to investigate or remedy potential violations of our policies, or to protect the rights, property, and safety of others, OHHF may share your information as permitted or required by any applicable law, rule, or regulation. This includes exchanging information for fraud protection and credit risk reduction with other entities.

Third-Party Service Providers
OHHF may share your information with third parties that perform services for us or on our behalf, including payment processing, data analysis, email delivery, hosting services, customer service, and marketing assistance.

Marketing Communications
OHHF may share your information with third parties for marketing purposes, as permitted by law, with your consent, or with an opportunity to withdraw consent.

Interactions with Other Users
If you interact with other site users, those users may see your name, profile photo, and descriptions of your activity, including sending invitations to other users, chatting with other users, liking posts, and following blogs.

Online Postings
When you post comments, contributions, or other content to the site, all users may view your posts, and they will be publicly distributed outside the site in perpetuity.

Business Partners
OHHF may share your information with our business partners to offer certain products, services, or promotions.

Social Media Contacts
If you connect to the site through a social network, your contacts on the social network will see your name, profile photo, and descriptions of your activity.

TRACKING TECHNOLOGIES

Cookies and Web Beacons
OHHF may use cookies, web beacons, tracking pixels, and other tracking technologies to help customize the site and improve your experience. When you access the site, your personal information is not collected using tracking technology. Most browsers are set to accept cookies by default. You can remove or reject cookies, but be aware that such action could affect the availability and functionality of the site. You may not decline web beacons. However, they can be rendered ineffective by declining all cookies or modifying your web browser’s settings to notify you each time a cookie is tendered, permitting you to accept or decline cookies individually.

Internet-Based Advertising
Additionally, OHHF may use third-party software to serve ads on the site, implement email marketing campaigns, and manage other interactive marketing initiatives. This third-party software may use cookies or similar tracking technology to help manage and optimize your online experience with us. For more information about opting out of interest-based ads, visit the Network Advertising Initiative Opt-Out Tool or Digital Advertising Alliance Opt-Out Tool.

Website Analytics
OHHF may also partner with selected third-party vendors, such as Google Analytics and others, to allow tracking technologies and remarketing services on the site through the use of first-party cookies and third-party cookies, to, among other things, analyze and track users’ use of the site, determine the popularity of certain content and better understand online activity. You consent to these third-party vendors collecting and using your information by accessing the site. You are encouraged to review their privacy policy and contact them directly to get responses to your questions. OHHF does not transfer personal information to these third-party vendors. However, suppose you do not want information collected and used by tracking technologies. In that case, you can visit the third-party vendor, the Network Advertising Initiative Opt-Out Tool, or the Digital Advertising Alliance Opt-Out Tool.

You should know that getting a new computer, installing a new browser, upgrading an existing browser, or erasing or otherwise altering your browser’s cookie files may also clear certain opt-out cookies, plug-ins, or settings.

THIRD-PARTY WEBSITES

The site may contain links to third-party websites and applications of interest, including advertisements and external services, that are not affiliated with us. Once you have used these links to leave the site, this Privacy Policy does not cover any information you provide to these third parties, and OHHF cannot guarantee the safety and privacy of your information. Before visiting and providing any information to any third-party websites, you should inform yourself of the privacy policies and practices (if any) of the third party responsible for that website. You should take the steps necessary to, in your discretion, protect the privacy of your information. OHHF is not responsible for any third parties’ content or privacy and security practices and policies, including other sites, services, or applications that may be linked to or from the site.

SECURITY OF YOUR INFORMATION

OHHF uses administrative, technical, and physical security measures to help protect your personal information. While OHHF has taken reasonable steps to secure the personal information you provide to us, please be aware that despite our efforts, no security measures are perfect or impenetrable, and no method of data transmission can be guaranteed against any interception or other type of misuse. Any information disclosed online is vulnerable to interception and misuse by unauthorized parties. Therefore, OHHF cannot guarantee complete security if you provide personal information.

POLICY FOR CHILDREN

OHHF does not knowingly solicit information from or market to children under 13. If you become aware of any data OHHF has collected from children under age 13, please contact us using the contact information below.

CONTROLS FOR DO-NOT-TRACK FEATURES

Most web browsers and some mobile operating systems include a Do-Not-Track (“DNT”) feature or setting you can activate to signal your privacy preference not to have data about your online browsing activities monitored and collected. No uniform technology standard for recognizing and implementing DNT signals has been finalized. As such, OHHF does not currently respond to DNT browser signals or any other mechanism that automatically communicates your choice not to be tracked online. If a standard for online tracking is adopted that OHHF must follow in the future, OHHF will inform you about that practice in a revised version of this Privacy Policy. Most web browsers and some mobile operating systems include a Do-Not-Track (“DNT”) feature or setting you can activate to signal your privacy preference not to have data about your online browsing activities monitored and collected. If you set the DNT signal on your browser, OHHF will respond to such DNT browser signals.

OPTIONS REGARDING YOUR INFORMATION

Emails and Communications
If you no longer wish to receive correspondence, emails, or other communications from us, you may opt out by:
● Contacting us using the contact information provided below
If you no longer wish to receive correspondence, emails, or other communications from third parties, you are responsible for contacting the third party directly.

CALIFORNIA PRIVACY RIGHTS

California Civil Code Section 1798.83, also known as the “Shine The Light” law, permits our users who are California residents to request and obtain from us, once a year and free of charge, information about categories of personal information (if any) OHHF disclosed to third parties for direct marketing purposes and the names and addresses of all third parties with which OHHF shared personal information in the immediately preceding calendar year. If you are a California resident and would like to make such a request, please submit your request in writing using the contact information provided below.

If you are under 18, reside in California, and have a registered account with the site, you have the right to request the removal of unwanted data that you publicly post on the site. To request removal of such data, please contact us using the contact information provided below, and include the email address associated with your account and a statement that you reside in California. OHHF will ensure the data is not publicly displayed on the site, but please be aware that the data may be partially removed from our systems.

CONTACT US

If you have questions or comments about this Privacy Policy, please contact us at:

Ollie Hinkle Heart Foundation
144 W Lockwood Ave, Suite 201
Webster Groves, MO 63119
info@theohhf.org

Written By/Date: Amy Hogan, CPA, Finance & Compliance Manager 9/14/2022

Reviewed and Revised By/Date: Katy Linnenbringer, Attorney, OHHF Board Member  10/14/2022.

Approved By/Date: OHHF Board of Directors 2.16.2024

Updated By/Date: Beth Rumack, Chief Operating Officer, 1/30/2023

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CONTACT US
info@theohhf.org
144 W. Lockwood Ave, Suite201 Webster Groves, MO 63119

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Riley’s Story

Riley was born with tetralogy of Fallot with pulmonary stenosis and complete heart block. He underwent his first open heart surgery at just two months old to repair his heart and a few weeks later had a cardiac pacemaker placed. Since then he has had his pacemaker replaced twice, once after coding in the hospital, and will need additional replacements as he grows.

Riley is happy and healthy living at home with his amazing grandmother, Tracy, and enjoys playing catch, singing and working on PT and OT with Missouri First Steps.

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Stella’s Story

Stella was born with hypoplastic left heart syndrome (HLHS) in December 2015 – a CHD that meant she would only have half a working heart and need a series of three surgeries to reconstruct her heart’s anatomy. She underwent her first open heart surgery when she was only two days old, and then additional surgeries at four months old and three years old. Thankfully her gifted surgeons were able to create a stable heart for Stella and she has been the light of her family’s life ever since!

Today Stella is a spunky and smiley five year old that brightens the day of everyone she meets.

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Evie’s Story

Evie was born at twenty weeks with hypoplastic right heart syndrome. Her surgeons had planned a series of three surgeries to repair her heart, but unfortunately at birth they discovered her coronaries were missing or abnormal. At one week old, Evie was listed for a heart transplant. While waiting for her hero heart, she was placed on ECMO. At eight weeks old she was blessed with a second chance at life and received a heart transplant!

After eighty-two days inpatient, Evie went home for the first time where her parents are able to enjoy their happy and healthy baby girl.

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Emmalyn’s Story

Emmalyn is a year and a half old and was born with Transposition of the Great Arteries (TGA). She had her first surgery at four days old and then again at nine days old. She has since had two angioplasties.

Emmalyn is healthy and thriving. She loves to eat fruit of all kinds, play with all of her animals, play in water, and be outside!

Heart Warrior - financial request
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Calvin’s Story

Calvin was diagnosed with a congenital heart defect at fifteen months after the pediatrician noticed a heart murmur, along with other chronic respiratory issues. Calvin has undergone two open heart surgeies in order to re-establish correct blood flow and repair his CHD.

Although Calvin’s CHD will always require specialized care, he is now a happy and thriving four and a half year old. He loves to play golf, play outside, drive his gator and anything to do with trucks, tractors, trains or airplanes.

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Allyson’s Story

Allyson is a five year old Heart Warrior. She was diagnosed with a single ventricle heart, heterotaxy syndrome, Noonan’s Syndrome and has survived multiple heart surgeries and a long list of complications over her little life.

Allyson is a preschooler and is so excited to go to kindergarten next year! She has three older siblings who mean the world to her. Allyson is extremely adventurous and her favorite thing to do is go to Target.

This girl is so full of spunk and fight and she is changing the world around her with her story.

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NYTASHA TAYLOR - Chairperson

Vice President Drug Sourcing, Express Scripts

KATY LINNENBRINGER - Vice Chairperson

Member at Large Criminal Defense Attorney, Pelikan & Orris LLC

TEMEKA GAUSS

Advise and Counsel Lead, BJC Healthcare

TONY IRACE

Owner, Packaging Concepts Inc.

DR. LESLIE DAVIS

Licensed Clinical Professional Counselor and Relationship Coach in Private Practice Heart Mom

RICK PUDER

Retired Senior Leader in Customer Experience, Training, and Sales Enablement Adult Heart Warrior

MATT DUNAWAY

CEO, Tarlton Realty Heart Dad

ROBBIE DEALEY

Operations Manager, Missouri Center for Public Health Excellence Adult Heart Warrior

MEGAN BITTLE

President & CEO of RSI Kitchen & Bath

LINDSEY CARLIE

Bunge – Global Talent Acquisition Manager

KYLEY PRUITT-TATE

Senior Director of Talent Acquisition, Advantage Solutions

LAUREN SHELLEY

Chief Operating Officer, Jasper Paul PR & Marketing Adult Heart Warrior

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Ari’s Story

Meet Ari, our spunky vivacious 5-year-old heart warrior, Miss America contestant, and Latoya heart mom extraordinaire. Miss Bey was diagnosed with complex single ventricle heart disease early in her mom’s pregnancy.

Their story has also been complicated by congenital heart disease and cancer. Latoya was diagnosed with breast cancer and underwent treatment before Ari’s birth.

Ari had her first open heart surgery at one week of age and her second at 6 months old. This dynamic mother-daughter duo are the real heroes.

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Diego’s Story

Meet Diego, a 14-year-old heart warrior with Hypoplastic Left Heart Syndrome. He has endured multiple surgeries that rerouted his blood flow to maximize his heart’s function. These procedures have been so effective that he has been cleared to play sports and leads a life without constraints.

Diego is an active teen who loves flag football, video games, dad jokes, and walking his dog. His laugh is infectious and always brings an energy and joy that lights up any room. He is the oldest of two brothers, and despite the typical sibling rivalry, he enjoys hanging out with his younger brother and playing video games.

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Jenn Hinkle was born and raised in St. Louis, Missouri, and attended DePaul University in Chicago, where she graduated in 2004 with a degree in marketing. Jenn’s early career began at Gibsons Steak House in Chicago, where she gained invaluable experience in hospitality and met her soul mate. Chicago is Jenn’s second home, but St. Louis called her back to start the next chapter of her life with Mark Hinkle. Jenn’s career in the restaurant industry continued to flourish as she welcomed her first child, Maddie, into the world in 2009. Then shortly after, along came Oliver in 2011.

Ollie was born with a congenital heart defect (CHD) that took their family in and out of the hospital for nearly 14 months. Unfortunately, he lost his battle with CHD in 2013. From this experience, the Hinkle’s set out to take their love for Ollie and all the love they were shown and share it with others. Jenn and Mark know firsthand the heartache and struggle of having a critically ill child and what a difference even the tiniest gesture of love can make. They took the pain and grief they felt and turned it into a way to give back to help them heal and, at the same time, spread more love to the heart community than they could ever imagine through the Ollie Hinkle Heart Foundation (OHHF).

The Hinkle’s started investing in technology and research through the Children’s Heart Foundation, where they also served on the board for 3 years. Through that experience, they decided that they also wanted to provide outreach and individualized support to heart families. Today OHHF is a successful and influential organization thanks to Jenn’s leadership, as she positioned the team and programs to be the go-to resource for heart families and healthcare professionals in St. Louis and beyond. In addition, Jenn and Mark co-own the Olive + Oak Hospitality Group, where they have established their home in the Webster Groves community with their two daughters, Maddie and Annie, and fulfilling Ollie’s legacy.

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Born and raised in Alton, Illinois, Mark fell in love with food at an early age. When he wasn’t terrorizing the neighborhood with his three brothers, he would indulge in his favorite cooking shows featuring the likes of Emeril Lagasse, Jack McDavid, and Martin Yan. Never foreseeing a “career” in food, he attended the University of Illinois and pursued a degree in business. To earn a little cash, he worked in kitchens in Champaign. After graduating, he moved to Chicago, where he landed a job in banking. Though it all looked great on paper, he couldn’t resist his true calling with one of the most outstanding restaurant cities in the country at his fingertips; the banking gig didn’t last long.

He took his first front-of-house job working at the perpetually busy Hugo’s Frog Bar and Fish House. Under some of Chicago’s best Maître D’s guidance, he learned how to run a great restaurant. While he never lost his passion for the kitchen, he followed his dreams of delivering old-school hospitality. After stints within Gibsons Restaurant Group, at RL and Gibsons Steakhouse, he earned a spot as General Manager of Hugo’s at 25 and swept his true love off her feet. In early 2007, Mark and Jenn moved back to St. Louis to tie the knot, start a family, and join what was becoming an inspiring local restaurant community.

After acting as General Manager for two restaurant openings, Mark eventually found a home at the Chesterfield landmark, Annie Gunn’s; he found his niche there. His passion for not just the guests but also food, wine, beer, cocktails, and all aspects of the business evolved. In 2015, after falling in love with the character and charm of Webster Groves, Mark set out to bring something new to the neighborhood his family called home. Determined to create a warm, bustling spot with thoughtfully prepared food and gracious hospitality, Olive + Oak was born. As additional opportunities in Old Webster presented themselves, the group expanded, opening The Clover & the Bee, O+O Pizza, Perennial on Lockwood, and a private event venue, The Hall.

Mark’s leadership and impact on the local restaurant community have been profound, putting Webster Groves on the map for some of the best culinary delights and wine pairings in town while creating awareness about pediatric heart disease through their family’s story.

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Diya’s Story

Diya was born in 2007 with double outlet right ventricle with hypoplastic left ventricle and has a twin brother. She underwent three open heart surgeries early in life. She lives a healthy life with the support of her cardiac team.

Diya loves socializing with her friends, is focused on good grades, and is highly athletic. She is a starting pitcher on her high school’s baseball team, training to be a powerlifter, and has earned the President’s Education Award for academic excellence. At age 11, she earned college credits in algebra and pre-calculus from Arizona State University. Diya is inspiring other heart children to find their possible.

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Beth grew up in St. Louis City as an only child and a fierce point guard at Bishop DuBourg Highschool before leaving St. Louis to fill her desire to see and know the world after completing her BSN at Deaconess College of Nursing to start her career in Colorado then onto California where she trained at the University of California-San Francisco as a Neonatal Nurse Practitioner (NNP). Then onto Arizona as an NNP for a private practice Neonatology group before being recruited as the Program Director of Fetal & High-Risk Cardiac Infant Programs, Outpatient Cardiology Supervisor, & Cardiac Nurse Practitioner before returning to St. Louis in 2012 to spend the next nine years of her career with BJC Healthcare System, first as a manager then as their Director of The Heart Center at St. Louis Children’s Hospital & Washington University, Cath Lab & Recovery, Mechanical Assist: ECMO & CRRT, Perfusion, Interventional Radiology, Care Coordination along with serving as the Chief Advanced Practice Provider for St. Louis Children’s Hospital and Barnes Jewish Hospital.

As Beth’s career path took her back to her hometown, it was clear that so much had remained unchanged in healthcare and racial inequities. Beth credits Amy Hunter, Vice President of Diversity, Equity, & Inclusion of Caleres, for entering her life and inspiring her to do more to move the needle at St Louis Children’s Hospital regarding race equity culture and dismantling oppression. Beth is committed to doing her own personal work along with leading and infusing racial equity work into everything she touches, for example, by developing the Antiracism Coalition Oversight Board for the Cardiac Service Line, executive leadership support of the Black Hair Care Project, and leading a comprehensive DEI strategic development and deployment plan.

Beth was honored to join the Ollie Hinkle Heart Foundation (OHHF) in 2018 to serve as a board member supporting OHHF’s mission. This role allowed Beth to be a thought partner for OHHF’s strategic direction to keep putting the “Heart Back in Healthcare” by eliminating barriers to mental health care while serving as a liaison between OHHF with local children’s hospital(s) and services to cultivate relationships focused on community involvement and philanthropy to provide financial and social benefits to the greater heart community.

As one chapter closes, a new chapter begins for Beth Rumack as the Director of Partnerships with the Ollie Hinkle Heart Foundation to serve our local and national community bringing Ollie’s Branch to new markets to eliminate barriers to access to mental health care, impact state, and federal policy, and address social determinants of physical and psychological health through a collective lens.

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Addison’s Story

Addison was born in 2008 with Hypoplastic Left Heart Syndrome with Shone’s Complex. This was unknown to her parents until she was emergently transported from her home in Yuma to Phoenix, Arizona, during her first week of life. Addie had five open heart surgeries and overcame two runs on ECMO, all before age five. Addie represents perseverance. Her favorite color was purple, and she loved backpacks.

Addie’s life was far too short, and her story is not perfect, but it is a life she made perfect for herself and everyone around her.

Addison warrior
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Danny Sullivan’s Story

Danny died in his teens from congenital heart disease (CHD) during surgery at Children’s Hospital in the 1950s. Danny was one of the earliest to experience an open heart operation for this condition. Thankfully, this type of surgery is much more successful all these years later. But the mental challenges Danny’s parents and siblings faced then are still challenging heart families today. Kathleen Sullivan MacDonough, Danny’s oldest sister, decided to fund Ollie Hinkle Heart Foundation’s Telehealth solution to fill these mental health gaps for heart children and their families in Danny’s memory.

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Helpful Resources

  • Suicide & Crisis Lifeline: Call or text 988
  • National Domestic Violence Hotline: 1-800-799-7233
  • Crisis Text Line: Text “DESERVE” TO 741-741
  • Lifeline Crisis Chat (Online live messaging): https://988lifeline.org/chat
  • Self-Harm Hotline: 1-800-DONT CUT (1-800-366-8288)
  • Essential local and community services: 211, https://www.211.org/
  • Planned Parenthood Hotline: 1-800-230-PLAN (7526)
  • American Association of Poison Control Centers: 1-800-222-1222
  • National Council on Alcoholism & Drug Dependency Hope Line: 1-800-622-2255
  • National Crisis Line – Anorexia and Bulimia: 1-800-233-4357
  • LGBT Hotline: 1-888-843-4564
  • TREVOR Crisis Hotline: 1-866-488-7386
  • AIDS Crisis Line: 1-800-221-7044
  • Veterans Crisis Line: https://www.veteranscrisisline.net
  • TransLifeline: https://www.translifeline.org – 877-565-8860
  • National Maternal Mental Health Hotline: 1-833-TLC-MAMA (1-833-852-6262)
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Ollie’s Branch Waitlist Form

Are you a heart warrior, parent/guardian, or caregiver seeking Ollie’s Branch mental health services in an area where we do not have a current partner? Send us a message to add yourself and place your name and information on our waitlist should Ollie’s  Branch become available in your state. We will contact you in the future to see if you may be interested in our services.

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