OVERVIEW

Heart families have the unfortunate experience of knowing what it’s like to live in a hospital – which often means parents are faced with the impossible decision to work or take unpaid leave to stay by their child’s side while they fight for their life. Financial support for housing, utilities, food insecurities, travel, etc. eases the additional stress that comes from the days, weeks, or even months spent inpatient and allows a family to focus their attention on what matters most, their heart warrior.

Our mission is to provide individualized support to ease the hardships experienced by heart families.

We achieve this through:

  • Loving support through financial grants and care packages
  • Connecting heart families through events
  • Building bonds for lifelong support
  • Creating a network of love through partnerships
WHAT WE DO

We know that it is important to meet the basic needs of heart families before they can address other aspects of life like mental health. OHHF provides financial support so families are better equipped to care for themselves, their heart warrior, and their family as a whole. We fund requests on a case by case basis to families whose heart warrior is currently inpatient, or has been admitted within 3 months of the request. All payments are issued directly to the vendor.

Click the icons to see some examples of our work!

Families can apply for financial assistance directly or via a referral from a social worker or physician.

CREATING COMMUNITY

Peer-to-Peer Support

The Ollie Hinkle Heart Foundation is proud to be a leading source of information, community, and loving support for heart parents in the St. Louis area and beyond. We encourage heart parents to reach out to us directly with any questions or special needs they may have. We look to support heart parents in any way we can, even if they simply need someone to talk to or an understanding shoulder to lean on.

Connecting and Building Bonds through Heart Family Events

We look to create strong bonds with heart families and provide support aimed at making a difference in their fight against CHD. The Ollie Hinkle Heart Foundation has become a local resource for many heart families, helping to make connections and support personalized needs as much as possible. Additionally, we frequently connect families and build bonds by hosting events such as:

  • Heart Mom Happy Hours
  • Family Movie Night
  • Heart Family Day at TopGolf – Register Here
  • Heart Mom Ornament exchange
  • Dinners for hospital staff and families

If you or your company are interested in sponsoring a heart family event, please contact kate@theohhf.org.

Ambassador Program

Extending our reach through direct support and building a network of ambassadors so no need goes unmet. The OHHF Community Ambassador pilot program launches in Pennsylvania and Texas in Summer of 2022 to raise awareness for OHHF Nationally and ensure no family falls through the cracks or faces barriers in accessing support.

TESTIMONIALS
CONTACT US
144 W. Lockwood Ave, Suite201 Webster Groves, MO 63119

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Riley’s Story

Riley was born with tetralogy of Fallot with pulmonary stenosis and complete heart block. He underwent his first open heart surgery at just two months old to repair his heart and a few weeks later had a cardiac pacemaker placed. Since then he has had his pacemaker replaced twice, once after coding in the hospital, and will need additional replacements as he grows.

Riley is happy and healthy living at home with his amazing grandmother, Tracy, and enjoys playing catch, singing and working on PT and OT with Missouri First Steps.

Stella’s Story

Stella was born with hypoplastic left heart syndrome (HLHS) in December 2015 – a CHD that meant she would only have half a working heart and need a series of three surgeries to reconstruct her heart’s anatomy. She underwent her first open heart surgery when she was only two days old, and then additional surgeries at four months old and three years old. Thankfully her gifted surgeons were able to create a stable heart for Stella and she has been the light of her family’s life ever since!

Today Stella is a spunky and smiley five year old that brightens the day of everyone she meets.

Evie’s Story

Evie was born at twenty weeks with hypoplastic right heart syndrome. Her surgeons had planned a series of three surgeries to repair her heart, but unfortunately at birth they discovered her coronaries were missing or abnormal. At one week old, Evie was listed for a heart transplant. While waiting for her hero heart, she was placed on ECMO. At eight weeks old she was blessed with a second chance at life and received a heart transplant!

After eighty-two days inpatient, Evie went home for the first time where her parents are able to enjoy their happy and healthy baby girl.

Emmalyn’s Story

Emmalyn is a year and a half old and was born with Transposition of the Great Arteries (TGA). She had her first surgery at four days old and then again at nine days old. She has since had two angioplasties.

Emmalyn is healthy and thriving. She loves to eat fruit of all kinds, play with all of her animals, play in water, and be outside!

Heart Warrior - financial request

Calvin’s Story

Calvin was diagnosed with a congenital heart defect at fifteen months after the pediatrician noticed a heart murmur, along with other chronic respiratory issues. Calvin has undergone two open heart surgeies in order to re-establish correct blood flow and repair his CHD.

Although Calvin’s CHD will always require specialized care, he is now a happy and thriving four and a half year old. He loves to play golf, play outside, drive his gator and anything to do with trucks, tractors, trains or airplanes.

Allyson’s Story

Allyson is a five year old Heart Warrior. She was diagnosed with a single ventricle heart, heterotaxy syndrome, Noonan’s Syndrome and has survived multiple heart surgeries and a long list of complications over her little life.

Allyson is a preschooler and is so excited to go to kindergarten next year! She has three older siblings who mean the world to her. Allyson is extremely adventurous and her favorite thing to do is go to Target.

This girl is so full of spunk and fight and she is changing the world around her with her story.

KATY LINNENBRINGER
President

Criminal Defense Attorney, Pelikan & Orris LLC

AMANDA SCHMITT
Vice President

SVP, Commercial Banking Relationship Manager, U.S. Bank

PAPPIM STEVENSON
Secretary

Supply Chain Sourcing Coordinator, BJC

LINDA HUNTER
Expansion Chair

Philanthropist

TIM WALKENHORST, CFP
Financial Chair

Financial Advisor, Renaissance Financial

LAURA BOHON
Senior Executive Search Consultant, Benskin and Hott Talent Partners and Heart Parent

NYTASHA TAYLOR
Express Scripts, VP Drug Sourcing

MAGGIE STIEVEN JEWELL
Owner, MKS Designs

MATT SCHMITT
Director, Business Development, Centene Corporation

TEMEKA GAUSS
BJC Healthcare, Advise and Counsel Lead

ANNE PENNICK
Susan G Komen, Product Owner

Ari’s Story

Meet Ari, our spunky vivacious 5-year-old heart warrior, Miss America contestant, and Latoya heart mom extraordinaire. Miss Bey was diagnosed with complex single ventricle heart disease early in her mom’s pregnancy.

Their story has also been complicated by congenital heart disease and cancer. Latoya was diagnosed with breast cancer and underwent treatment before Ari’s birth.

Ari had her first open heart surgery at one week of age and her second at 6 months old. This dynamic mother-daughter duo are the real heroes.

Diego’s Story

Meet Diego, a 14-year-old heart warrior with Hypoplastic Left Heart Syndrome. He has endured multiple surgeries that rerouted his blood flow to maximize his heart’s function. These procedures have been so effective that he has been cleared to play sports and leads a life without constraints.

Diego is an active teen who loves flag football, video games, dad jokes, and walking his dog. His laugh is infectious and always brings an energy and joy that lights up any room. He is the oldest of two brothers, and despite the typical sibling rivalry, he enjoys hanging out with his younger brother and playing video games.

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