Supporting the economic security of heart warriors and their families is at the center of our work. Childhood-onset heart conditions impact an individual’s long-term survival and every aspect of life, including job prospects, finances, insurance, and psychosocial health. OHHF provides equitable access to meet basic needs around nutritional food sources, secure housing, safe and reliable transportation, and more as a critical strategy to access physical and mental healthcare easily.
OHHF is not a crisis service. If you are in Missouri and seeking crisis services related to basic needs, please call 211 for immediate support. You can also check out findhelp.org for a list of services in your area.
Our mission is to provide individualized support to ease the hardships experienced by heart families.
We achieve this by providing:
LOVING SUPPORT through
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- Financial grants, care packages, and an annual holiday drive
BUILDING BONDS for lifelong support
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- Peer-to-peer support through our partners and dedicated OHHF for Families Facebook Group
- Connecting individuals and families through events
- Support and representation of heart warriors and their stories to be seen
FINANCIAL HELP
OHHF provides financial aid to support the needs of individuals or families receiving care from one of our Missouri partner hospitals. This support provides a bridge to address short-term needs while matching individuals and families to community partners to support long-term needs. We fund financial aid requests on a case-by-case basis to ACHD warriors or heart families whose child is currently inpatient or has been discharged within three months of the request. All payments are issued directly to the vendor.
FOOD SUPPORT
Discharge meals, help with groceries, etc.
TRANSPORTATION
Gas cards, public transportation, shared ride services, airfare, etc.
HOUSING
Rent, mortgage, hotel, utilities, home furnishings, etc.
OTHER
Medical equipment, funeral costs, personal goods, etc.
OLLIE’S PLATE
Ollie’s Plate is OHHF’s “Food is Love” initiative to provide heart families with nutritional meal bundles to make the transition from the hospital to home smoother. We empower families to incorporate healing with nutrient-dense foods into their wellness plans. These services are currently available for heart families in the St. Louis Region.
CARE PACKAGES
OHHF provides individualized care packages to those receiving care from one of our Missouri partner hospitals to ease the burdens of having a heart condition.
HOLIDAY DRIVE
Annually, OHHF adopts individuals and families from the Greater St. Louis and Chicagoland areas, spreading cheer, love, and peace of mind to the heart community. If you want to submit a nomination or give back, contact communityoutreach@theohhf.org.
PEER-TO-PEER SUPPORT
Whether you are looking for support for yourself as a parent or caregiver, or as a heart warrior, or are seeking support specific to a type or category of childhood onset heart disease, OHHF can help connect you with the greater heart community and share general and individualized resources.
SHARE YOUR STORY
Connect with other heart warriors’ stories and journeys.
SOCIAL EVENTS
OHHF hosts local events within the St. Louis region, allowing heart warriors and families to connect, share stories, and build lifelong relationships. Follow us on social media or contact our community outreach team for event opportunities throughout the year. Some of our heart community favorites include:
- Family Movie Night
- Heart Mom Ornament Exchange
- Annual summer and winter inpatient hospital dinners
If you or your company want to sponsor a heart family event, email grants@theohhf.org for more details.
EDUCATIONAL EVENTS
OHHF hosts educational events to engage audiences of all ages at various venues throughout our community to bring heart-healthy education, CPR and AED training, and provide life-saving screenings for childhood-onset heart disease.
- CPR at the Bar
- MasterMindz Sports & Wellness Summer Program with Street GeeKz Liberated
- Interested in hosting an event? Apply Here
Together We Can Spread More Love & Furnish Hope
Heart families receiving outreach services have access to a barrier-free unique shopping experience through Home Sweet Home to make their home whole with basic household furnishings as they transition into a new home.
Together We Are Extending Comfort & Support
HavenHouse St. Louis provides the comfort of home and community support to patients and their families traveling more than 25 miles to receive medical care in St. Louis.
Are you interested in linking arms as partners to support the heart community? Send us a message.
“We received the care package from OHHF. Thank you so much for sending this. Each item is thoughtful and reminds us that our daughter is special and we are not alone.”
“Seriously, this took so much stress and weight off my shoulders. I’m crying. Thank you to the foundation from the bottom of my heart. This is seriously the BIGGEST blessing to our family! I can’t thank you all enough.”
“Thank you from the bottom of my heart. OHHF has made a huge impact of improving our lives as we go through a really tough time.”
“We are five days away from [our heart warrior’s] next surgery, and it has been an absolute whirlwind getting ready. But, I wanted to drop a note and thank you for the phenomenally precious care package [our heart warrior] received in the mail the other day. Your note was especially heartwarming as we prepare to face yet another stressful operation.”
“Please know that your words had a truly positive impact on our family, and we are incredibly thankful that our paths crossed.”
“I cannot count the number of times that I have relied on you for our families in desperate need. I have countless stories of ways that you have changed the lives of our families and offered them relief when they had no one else.”